We have been on such an emotional roller coaster since November 2010. Andrew was first diagnosed with type 1 diabetes and then celiac disease one month later.
Since then, we've been scrupulous with keeping gluten out of our kitchen. With all of the precautions taken, Andrew's celiac antibodies are still not under the normal of <20. Granted, he started at around 134, but he should have been able to get under 20 eating gluten free. Right now his antibodies are 41.
We met with a nutritionist and went over everything in our kitchen to see if there was something we were missing. We came up with absolutely NOTHING. However, restaurants can definitely be a place for cross contamination. We do eat out 2-3 times per week.
Our plan of action is to repeat the upper endoscopy and see if his body is having damage done to his small intestines. There are some people that test positive for celiac antibodies and not have celiac. Since Andrew never had symptoms, we can never use that as a guide.
If he does NOT have damage, we will use 41 as his normal marker. If he does have damage, then we will stop eating out for 2 months and retest his antibody levels. If he is still high after that, then we will have to look into other reasons for the elevated antibodies.
Sunday, March 31, 2013
Saturday, March 23, 2013
If you add too much insulin up front, he'll go low. If you don't give enough, he'll go high. What is the perfect solution? If anyone reading this is on shots, please share your wisdom with me.
Since Andrew is still honeymooning, his body can still sometimes bring down a high at night. The hard part is whether to correct or not. Some nights, his body does the work and other nights it doesn't.
Until he qualifies for a pump, we'll just have to continue fighting the pizza blood sugar woes. The fight is on!!!!!
Saturday, February 23, 2013
It has been just over 2 years since Andrew was diagnosed with type 1 diabetes and celiac disease. Throughout his honeymoon, we've been able to only use fast acting insulin to control his numbers, and Carb counting has only included starchy carbs. His A1C was 7.6 at diagnosis and reduced to 5.0 over the past couple of years. So far, his morning fasting numbers have been normal (under 100) without long acting insulin. Things have been changing this past week. It has really caught me off guard. His numbers have risen into the upper 200's. This is with the normal carb ratio of 1:30 (1 unit of insulin for every 30g carbs consumed), and his morning numbers have also started to rise between 100 - 120. Full blown diabetes is staring me right in the face! I always knew that his honeymoon would eventually come to an end, but now I'm feeling a little nervous. I've actually got in a nice groove with his "behaving" diabetes. I don't think I'm going to be liking the "other side"! I guess the only thing I can do is wait it out a little. I will be contacting his endo. on Monday to go over this past weeks numbers. I'll keep you updated.