Diagnoses that is....We were home for a few days when the phone call came. "Hello?" I answered. The doctor on the other end explained that Andrew's gluten antibody number was very high - 134 to be exact. With a normal level being <20, I knew this wasn't good.
We had to wait a couple of weeks for an appointment with the gastroenterologist. The doctor gave us the option to redo the bloodwork because sometimes when diabetics are just diagnosed, it can falsely raise the antibodies. Our other choice was to go straight to the intestinal biopsy. As my husband and I discussed the two options, we decided to do the biopsy. I had done a lot of research on the internet and found that there is a strong connection between type1 diabetes and celiac disease.
As we walked into the prep room for the biopsy, I was trying everything I could do to keep back my tears. We have been through so much already with the diabetes and the thought of putting my baby to sleep was enough to put me over the edge. The first person we were introduced to gave me an extremely uneasy feeling. I tried to brush it off and then he opened his mouth. Yes, I was right, this person is
T-R-O-U-B-L-E! First when he asked what medications Andrew was taking, I told him Novolog. "Novolog", he said, "What's that?" I felt like saying, "Insulin, you moron!" I had told the hospital that Andrew was just diagnosed with diabetes when we scheduled his biopsy. This man then started to just rip me apart! He wanted to know why I gave him his nighttime Levemir and that his doses should have been adjusted. I told him that the gastro. dept. didn't tell me adjust it. He then proceeded to tell me that it was MY responsibility to contact the endo. department. At this point, tears start pouring out! Now I'm sad AND mad because I was able to hold myself together until this IDIOT starts picking a fight with me. We have just been diagnosed in the past two weeks with diabetes and we don't even have an endo. at this point, just the one that saw us in the hospital! Needless to say, we told the nurse that he better not step foot back into our room again.
As we wheeled Andrew into the procedure room, I actually had great peace. God carried me when I couldn't. I knew that Andrew was in God's hands as he softly drifted asleep.
When the doctor approached us after the procedure, he presented some pictures of Andrew's stomach and intestines. I actually found it to be quite fascinating. I guess primarily because I'm his mom.LOL He thought that it might be wise for me to start checking out some gluten free websites. At that very point, I knew that everything was just going to change yet again. As for Andrew, I actually eased him into the diagnosis. As I learned things, I shared them with him.
As you can see, our lives have truly been turned upside down. Through faith and love, we will all prevail...Not individually, but as a FAMILY. I welcome you all to follow our journey and become a part of our family.